The Human Mind, Feelings, Emotions and Chronic Pain ‘If you have that’


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Dalai Lama

 

Picture1By @ShaunyGibson – Used to be @ ShaunyNews

When you sit and try to define your purpose on this Earth when you ask who and what you are, we all do this. The irony is many will dismiss that they do this, so go look at that image above again, see it? When you are in a state of TOTAL feeling, at one with yourself and life and the universe, you care. When you care you hurt more, it comes with the packaging. I see so many people afraid to ‘Feel’ because they refuse to take on the burden that comes with it, that would be hurt or loss, whatever, you know? People refusing to go the full way and be true to themselves in fear they might get too close to something. I am not afraid of dying, I am afraid of dying now and leaving my partner too 8ea41f8ff202634e3ff7445fd86ae973 (1)soon. To get to that way of thinking an ‘Event’ must happen. For me the event happened in childhood and guides me now as an adult, in reality it is amazing, many call it God, I just call it amazing, superb, a blessing, lucky and other such words. When I say this to a friend who knows I live in utter agony they say “How can this be, you are Disabled and in pain” To get something we must first lose something. It can be the death of a person, the death of a habit, to forget someone or something, whatever it is, you need to lose before you feel what many like me do and see our World for what it really is, it’s a total hell hole in every sense of the word, but we do as individuals show and see act’s of love and kindness from others, but to gain we lose first, we must lose to get, for me it’s THAT SIMPLE, I was lost for a long time, it was lonely and hard, but all the time my partner and 2 sons were there, now here I am, smiling, happier than I have ever been, why? Because I lose BADLY. So not much else to lose here, so I love what I have and understand that, the pain will do what it will, so I choose life

Song made from the an Irvine Welsh book, then the movie Trainspotting  For those outside the UK who don’t know this Movie 
Part 1 – The beginning

Part 2 – The end…. Both filmed in my City, Edinburgh, Scotland

We all deny our own existence, many of us are wide awake and watching, listening and learning, I am one of these guys. I had a friends, 17 years a friend may I add, she is from Columbus120380-118513 Ohio in the US of A. She said “Shaun has changed” She wasn’t being nasty or rude, far from it. But I felt in an instant ‘Friends don’t do this’ What this is, is she stopped being my friend. When I got my (YES, YES I AM TALKING ABOUT MYSELF, THIS IS MY PAGE, I WRITE THIS IS OFTEN WHAT I DO, NOT ALWAYS) 😀 Sorry I had to get that out the way. Anyway, when I got my Disability, Chronic Pain Syndrome, it then upgraded to the 22827c360539999fff306fa99d5f1775‘Devils Disease’ Fibromyalgia it took things from me, abilities to do things, loss of many things I would before do, friends, family, respect, love, it gives sufferers the attributes and feelings of Motor Neuron Disease and Parkinson’s Disease I could go on. But I am a great believer in Karma. As I sit here now I would say 80% of my immediate family don’t think I am disabled, the 20% would be my Partner, two sons and closest friends. Not one family member is ‘cool’ with Fibromyalgia at all, they say like my friend in the USA did “Shaun has changed” And it gets boring and you do smile after a while, but you learn to surround yourself with people who don’t talk about it and you just have fun with, my partner, sons, close friends and a few on-line also. It is ‘Normal’ I have friends from School, these guys are all super cool, they mock my disability, so it’s all good, I wouldn’t have it any other way. To one mate I am ‘limpy’ for example 😀 This is how I want my disability to be, sadly around certain people it is near impossible because THEY have the problem you see?

Starter pack for the judgemental or is it just 'mental' :D

Starter pack for the judgemental or is it just ‘mental’ 😀

1dd6d21b566548f6552659025a6749baSome of my friends are people I done football with, coaches, players, players families, kids families, for 15 years till I had to stop 5 years ago now, some from school, guys I knew inside out, guys I held hands with at funerals of their parents, friends who are in-fact blood, people who you treat as blood, like Family. These people I know and they know me. When the Disability hit most were all “Oh Shaun I am sorry” I was like “Don’t you dare, no sympathy’ and it was never mentioned again. They all get it now 100%. I can’t make plans with a good mate who is a chef for example, we are REAL good mates, very close, as close as a brother should be. When I cancel they are all cool. With Family no understanding at all. I am sorry I have to say this, the person who said it will read this. I was told over the phone by a family member “You are always in bed” and “You never go out” At first I was angry but them my anger turned to “They are the ones in pain, not me” So again glance at the image above quickly and read it again

See, when you lose things, and they keep going, doesn’t stop, it becomes your ‘Reality’ and you understand and respect this is the way it is. Once you get to that way of thinking you can moveimgres-5_med on, you begin to smile again and be at peace with yourself and as I say, surround yourself with people who enjoy life, people who laugh every day, people like me who demand we have fun. So I go back to what that person told me, I said above “They are the ones in pain, not me” is when I figured out the nasty hurtful words and other issues. I am 41 and I love to learn, I need to learn, I have an open mind on ALL subjects and I believe this is healthy and needed, both apply. So when I understood the other person, the person who couldn’t get why “I am always in the house” or “I am always in bed” (Neither of which are true, not that I care, I don’t judge others) I understood that they were the ones, sadly, with the problems. See I learnt not so long ago, people who attack others with words, words the target won’t hear, mock or joke about a person in their absence, they are the ones with deep rooted problems

220px-Two_Dimensions_of_Emotion.gifThe people I surround myself with are just amazing people, Partner, kids, mates, whoever but others I can’t figure out, so I stopped. I realized they were figuring me out, or trying to figure me out so I gave in, if a person can’t figure a person out or doesn’t get a certain person I say sever the ties, walk away, stop trying to 2nd guess when you ARE wrong about people. Why spend time and brain power and time trying to figure a person out? 😀 How sad is that? I leave a smile because I have only very recently figured this out. I take the smile back and feel sad for these people. Not many, really, a handful. My parter will say “I don’t and can’t feel your pain or understand your mind especially on medication, BUT I AM HERE AND I LOVE YOU” that is all I needed to hear from the woman I love. She judges nobody, in our 25 years knowing each other as kids, primary school kids to now as adults late 30’s and 40 ish I have never once heard her say 1 (ONE) bad word about another. So ‘Surround yourself with the right people’ comes into play, I am around a goddess in every sense of the word, make no mistake I am the luckiest lad this side of Mars for managing to convince my partner to spend the rest of her life with me, so for that, I am blessed, happy, relieved! and in love. When all is said and done, this blog was fun, it made me smile because I demand I smile, to be the opposite is to not live, so easy choice right? Well not really, I know people who have killed themselves who have what I have, I know people talking about, people who have tried to take their life, people who were laughing one day and dead the next, some hide away from the world, I guess I hide away from MY world, the world I was born into, but I keep hold of the world I created for myself, anyone is welcome in, just knock the door, I will put the kettle on 😀 My partner loves me medicated or not, people actually judge me for being on Dr’s prescribed medication and to top it off most of the people who judge take illegal drugs and get drunk and fight and cause trouble where ‘Sociably Acceptable’ alcohol is allowed to roam free and destroy people, can you feel the Irony? I do, it hurts, wait! I hurt anyway!

This ring true for anyone?

This ring true for anyone?

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People die, many are worse, but this is bad, real bad, it makes loved ones not talk. Agreed loved one? I have changed, this changed me, try and be nice aye?

So look one final time at the image above. Makes sense now right? I have defined a meaning to it’s fullest, words from the Dalai Lama, and that’s hard to do right? Some of us can ‘Feel everything so deeply’ We are the ones who hurt the most, who take bad news the worst, we are the ones when say? one of our kids move out takes it hardest. It comes with the territory. To be at total one with yourself, to understand you in any shape, form, health whatever is hard to do. But once you can see it clearly it opens up amazing things in your mind. The pain sucks for sure, the medication sadly is enjoyable as it takes the pain away. I am ready for almost anything, I can take almost anything and I can understand almost everything and I now understand other people, I see them clearly now, lost, pretending to be what they are not, not on purpose, it’s just their ways and I respect others ways. I guess what I am saying is, I respect YOU for what you are, even if I have no time for you or I don’t like you, whatever, I respect you. Respect me back please. So this is for all my friends I lost, who are lost, this is for the people like me who are defined by the images I added. I never ask for sympathy, I would however like certain family members to just walk into my home and say “How you doing today you fragile fool” 1st of January and look what I did, I will leave you with the image of how 2014 ended and how 2015 started, and I wouldn’t have it ANY other way, these are battle wounds, I look at all my bumps and bruises as that, my prize for daring to live for daring to laugh and have fun in life. My new years resolution is to sort my sleeping pattern out, I will try but I am not holding my breath,  for long anyway…. Happy New Year 😉

 I Dropped the hoover on my ankle/shin and ripped some skin and 'I think' tore some ligaments. No break.. But agony and bruised like a break

I Dropped the hoover on my ankle/shin and ripped some skin and ‘I think’ tore some ligaments. No break.. But agony and bruised like a break

Now go have one last glance at that image at the very top and see if you understand it now 😉

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Taboo Series: Disability, being alone and this ‘Spirit of Christmas’ issue


 

christmas-tis-the-season-jolly-facebook-timeline-coverBy @ShaunyGibson – Used to be @ ShaunyNews

I know, I know, It’s Christmas and I probably should be on my sofa chilled out with a beer after Christmas dinner. Well sadly I can’t because of pain and all that amazing Jazz plus I don’t drink. What I suffer from is Fibromyalgia and ‘Fibro’ doesn’t know Christmas day from Pancake day it just keeps giving pain that is unbearable, the effects of Parkinson Disease and also Motor Neuron Disease and other really harsh disabilities like MS and ME and more. So for me I loved the day, loved to see my kids open presents and be with my Son, his partner and my Partner with my oldest son coming late with his partner

Fibromyalgia makes this time of the year almost impossible for people with made up invisible not hurting disabilities, disabilities that people in your life know more about than your Dr, I say that as it’s what society tells us, I find it strange that you often have to be in a wheelchair before someone will understand why you can’t visit them, I know people are dying, I know people who have died and people who have lost so this is where my own personal guilt comes into play, but as I am told by almost everyone, don’t think this way. Here are our symptoms: http://www.fmnetnews.com/fibro-basics/symptoms

Pain All Over – People describe fibromyalgia pain as deep muscular aching, throbbing, shooting, stabbing, or intense burning. Muscle groups used the most may hurt more. In addition, the severity of regional pains can make your fibromyalgia symptoms worse. The pain is unimaginable if you don’t suffer Fibro. This is the part that many can’t live with and we see suicide happen. The pain is very hard to describe, the best I can do is ‘All over toothache’ others have other ways of explaining the pain, for me all over toothache pain is what I feel. I feel like I have JUST broken several bones or snapped muscles, but it is only all day every day 😀 so it’s cool really. Many stay depressed and suicidal, I have been there and back, lost friends and family over it, all this  b@stard illness does is take from us all. 3% of the World’s 7 Billion populous suffer from Fibro. In the UK we grade it 1 to 10. Many are 2/3 just having pain in one area, I was 10 and left the pain clinic as it was pointless but I still help the pain team with sitting and speaking to Dr’s and Pain experts from all over the World at the Ashley Ainsley Hospital in Edinburgh, it has a few large halls that sit a few hundred or more. So although I suffer I spend more time helping others. It’s the old adage “To help others is to help yourself”

Fatigue – Exhaustion can be one of the most incapacitating fibromyalgia symptoms. You may feel as though your arms and legs are weighted down by concrete blocks and your body may be so drained of energy that every task requires great effort. I can be wide awake then *PING* Sleeping or sleepy. Heavy dry eyes, can happen an hour or 2 after a good sleep or at night. So too much sleep and not enough sleep. A pain it is, waking early and sleeping early is all our goals but if we are in agony and it’s 3am we have to just deal with it. For me this is the most annoying probably. I think if I fix this (Like now) for good I will live better. But I am at the mercy of Fibro

Sleep Difficulties – It’s not just about falling asleep. Repeat arousals prevent you from reaching deep, restorative sleep, so you wake up feeling as though you have been hit by a Mack truck. An overnight sleep study may show symptoms of repeat arousals, but a specific sleep disorder may not be found. For the past 5 nights I have been asleep early and up early, BRILLIANT!!! Before and I am sure it will come back I am up a day, down a day, I am missing half my life sleeping. That hurts when you miss family as I do. This is the single most difficult one that none of our families can understand and all we really try to get them to get.

Brain Fog – Trouble concentrating, retaining new information, and word-finding are common fibromyalgia symptoms that seriously interfere with daily functioning. You may be easily distracted and this symptom appears to correspond to the severity of pain (as though the brain is consumed by the pain, limiting your ability to perform cognitive tasks). This is the Parkinson Disease area of the disease. I can be talking and half way through talking *GONE* 😀 What I was talking about just vanishes, with friends/family it’s ok as they remind me, with strangers it’s embarrassing and I don’t like that bit. I tend to just not talk much now to strangers unless it’s email or type chat. Just makes it easier. This is the one thing (Pain aside) we all hate, I have to leave notes on my PC/Laptop/Phone etc for things like “Go to the toilet” or “Take Medication”

Morning Stiffness (Now Now 😀) – You may wake up to enhanced muscle soreness with fibromyalgia, but you probably also feel more stiff than usual. The cause of these muscle symptoms is unknown, but warm water and gentle stretching usually help alleviate them. I can’t move much for an hour after awakening. Often I need a cup of tea and medication before I can go about my day. Sometimes I just have to get up and walk like I am made of cardboard in agony. Also amazing fun, lol

Muscle Knots, Cramping, Weakness – No matter how much you try to relax your muscles, they may feel tense. Many contain rope-like knots called my ofascial trigger points, making you more susceptible to muscle cramping and weakness.The pain of fibromyalgia may also be a source of muscle weakness. These are very similar to Motor Neuron Disease, I get this 24/7, my hamstrings, calf muscles are worse but anywhere we have muscles/tendons etc sufferer friends and I get pain a if there has been a partial tear in any given area, go to the hospital, get a scan, all good. Very hard to diagnose us, but they hooked me up to electrical nodes and made pain happen by pulling and pushing my muscles all over, it showed increased pain activity so proving the pain was there

Digestive Disorders – Constipation, diarrhoea, abdominal pain, gas and bloating, irritable bowel, and nausea are found in roughly 40 to 70% of fibromyalgia patients. Acid reflux and a slowed digestion are also common. If you take strong pain killers it’s important to take anti-acid tablets or you will ruin your insides badly.

Headaches/Migraines – Recurrent tension headaches or migraines are present in 50 to 70% of fibromyalgia patients. Headache symptoms are usually rated as severe, occur at least two times per week, and often have a migraine component. This head pain is partly due to trigger points in the shoulder, neck, and head muscles. I get thumping headaches daily and medication does very little, laying down in bed can be the only treatment

Balance Problems – Balance confidence is greatly reduced in people with fibromyalgia. Walking patterns are altered and the odds of falling are increased. I have feel a few times now, once I slipped and knocked myself out in the hall, woke up in Dunfermline Hospital, great fun! lol

Itchy/Burning Skin – Your skin may look normal or it may have itchy red bumps similar to hives. Burning pain, similar to a bad sunburn, is also common in fibromyalgia patients. I personally get ‘Burnt Skin Syndrome’ where it feels like you are in an oven

Other Strange Symptoms? – Do bright lights, sounds, or odours bother you? These symptoms could be part of your fibromyalgia. Learn more by reading our article, “Is Sensory Overload Part of Your Fibromyalgia?”

The reason I mention all this is because it seems the only time of the year any of us with Fibromyalgia or any kind of Chronic illness get approval from family is Christmas 😀 I don’t understand this. But overall we see people being nice to each other at Christmas. My oldest son was in the drive through at McDonalds yesterday and paid for the people in the car behind, about £5 or so but that is the ‘Spirit of Christmas’ When he told me I was so proud of him, that is EXACTLY what I brought Dean and Ryan up to be, decent young men, men who will notice others around them and know love and kindness

Now I don’t speak for myself I have a few Facebook groups I run and this one here for people with Chronic illnesses allows people to get help and it helps me. Knowing we are not alone helps greatly, I guess in any situation? https://www.facebook.com/groups/699321140156812/ I notice every Christmas people are smiling, opening doors for you, letting you drive out of a road or wherever. The spirit of Christmas is true there is no argument because come January everyone turns miserable again. During the festive period everyone is a saint but 2 weeks later we all go back to the grind and hatred starts again. I have always asked myself why can’t we all act like this all year? I know many through support groups in real life and online who find it impossible to be happy, some people are just sad and it’s an illness. It’s like a heroin addict, we jail them, why not help them? This is what I am getting at. We as a species have times when we help and show love and times where we all turn miserable, me included but to be fair I do try to laugh my way through life, we are here once so smile and live for God’s sake 😀

Anyway, hope you all had a brilliant Christmas and all my friends in the USA are having a good day. It is past 7pm here in Scotland now so nearly over. For West coast USA it’s just starting, in Australia it’s already boxing day at that side of the World. I will sit and smoke a cannabis joint tonight as it is the ONLY thing that takes my pain away for any amount to of time. And as this is ‘Taboo’ series why is it people can get blind drunk, hit others, spread STD’s, cause havoc in city centre’s all over the World, lead to partners fighting, society allows this, society says ‘This is ok’ Yet if a person say? Family see me type “I will smoke a cannabis joint” I will probably be judged. This is how backwards our World can be. Our World is truly one big ironic pantomime for sure

Here, a song that I hate and a statement from a movie 😀

Wham! – Last Christmas
Via MASmusik100 on You Tube

Keep the Change You Filthy Animal
Via r2k3982 on You Tube

Shaun

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Celtic FC: http://thecelticnetwork.com/
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Killing Me Softly : Fibromyalgia & Chronic Pain Deaths


I have always loved this saying

I have always loved this saying

By @ShaunyGibson – Used to be @ ShaunyNews Via: Lisa Lorden Myers

Earlier today I did this blog https://acenewsdesk.wordpress.com/2014/12/12/taboo-series-suicide/ and I posted it on my Fibromyalgia and any Chronic issue Facebook page for us all to discuss Chronic Illness, things that don’t kill you, they kill your spirit if you let it. I seen this here and I MUST share this page with YOU who have chronic pain or Fibromyalgia or any or any other “Can’t kill you” chronic Condition here> http://www.cfidsselfhelp.org/library/killing-me-softly-fmcfs-suicide Links and as much info on the “Devils Disease” as I could throw together. Not till I started my Group on Facebook for Chronic Pain/Fibro/Depression, anything Chronic, did I understand the level of suffering in others…

…..I AM NOT ALONE, AS I AM MADE TO FEEL BY FAMILY AND FRIENDS. But hey, that is no happy feeling. Reassuring maybe? Our biggest challenge as sufferers is almost impossible to the point we just say ‘Feck it’ and give up. I don’t want to give up on family/friends who don’t like ‘New Shaun’ because to me they are ‘New Them’ it is totally a 2 way street. I notice people look at me as if I am screwing the Government for money, facts are I receive not ONE PENNY from the Government. The only message I want to get through to my loved ones is “This is why I am in bed, this is why I am in a lot, this is why I don’t visit” and once we get past that we can all smile, love, have fun and move the FECK ON! I speak for many (And I tagged a few in here when posting) when I say this, all we want is UNDERSTANDING. Then we can all move on, simple really. But we see things that may not be there, we feel things that may not be there. But to define this is to define Fibro. Fibro is new, not many people know about it, not many who live in pain know they have it. STRESS = PAIN as well as other things with Fibro/CPS, I know in America for example you guys pay for EVERYTHING and that is wrong. Here in Scotland EVERYTHING Health related is free. Now Scotland has greater powers it will only get better. Seeing your Dr is Free, All your Medication is free, Hospital visits be them arranged or not are free, X-Rays and ALL operations are free. I could not survive in a country anywhere where the stress of not knowing all of the above was covered so it must be murder for you guys. My heart goes out to you all 

In Scotland  they grade you 1 to 10…You get asked 100 questions in a book you take home, each question is 1 – good or 10 – DEAD (I am joking, 10 is the worst) I am 10, do you know your score? Try it below

PLEASE SHARE YOUR RESULTS IN THE BLOG AND ON MY PAGE ALSO, IT HELPS US ALL!! http://www.anapsid.org/cnd/diagnosis/berne.html

Via Hunter Medicare Local on You Tube – Official Scottish Video from our NHS (National Health Service)
PLEASE GIVE THIS A WATCH PEEPS..IT ‘WILL’ HELP. Ask your partner, parents, family, friends etc to watch also.
Understanding Pain: What to do about it in less than five minutes?

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Knowing the signs are crucial, if we can save one life this article and you reading it was worth it

 

Fibromyalgia-its-symptoms-and-causes

photo_libraryBy Lisa Lorden Myers


Note: Lisa Lorden Myers, a CFS/fibromyalgia patient from California, is a well-known writer. For three years, she was the Guide to Chronic Fatigue Syndrome and Fibromyalgia at About.com. This article was originally published in Fibromyalgia Frontiers, the journal of the National Fibromyalgia Partnership. Lisa now runs the website
Living with CFS & Fibromyalgia.

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WE ALL HAVE THESE DAYS

On August 15, 1996, Dr. Jack Kevorkian reportedly assisted in the suicide of Judith Curren, 42, of Pembroke, Massachusetts. She suffered from chronic fatigue syndrome (CFS) and fibromyalgia (FM). Jan Murphy, another FM sufferer, also turned to Kevorkian for help; ABCNews.com later reported her assisted suicide in the summer of 1997. A recently publicized investigation in the UK revealed that just last year, Julia Revill, age 58, hanged herself outside her family home after becoming frustrated at a lack of medical help for her Myalgic Encephalomyelitis (ME). ME is the name used abroad for chronic fatigue syndrome. She had shown some improvement after treatment at the UK’s only ME hospital in Essex but had been refused funding by the local health authority for further treatment there, and her condition deteriorated. The loss of “one of our own” always hits hard. These and other reports sent shock waves through the FM/CFS community. Patients with fibromyalgia and chronic fatigue syndrome have an exquisite understanding of the pain, both physical pain and emotional anguish, associated with having a poorly understood, incurable disease. “When you start hearing there is no hope, no treatment, and no cure over and over, you lose your will to fight,” wrote Jan Murphy in a eulogy read at her funeral. “What most people saw of me was a shell of what was going on inside.” The FM/CFS community is certainly not alone in addressing the problem of suicide. Each year, about 30,000 people in the United States take their own lives. It is the 11th leading cause of death in our country and accounts for about 1.5% of all deaths in the US.

Suicide and FM/CFS

It is unclear whether there is an increased risk of suicide among FM/CFS patients, as compared to the general population. In 2006, Leonard Jason and colleagues published a study analyzing a memorial list maintained by the National CFIDS Foundation. They reported that suicide was one of the three leading causes of death in the sample, along with heart disease and cancer. The researchers noted several limitations to the study, including uncertainty about whether the list was representative of people with CFS and concluded “clearly, it is not possible to generalize the data from this memorial list to the overall population of patients with CFS.”

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The truth I just know hurts us all, Family who get angry with us…

However, there is evidence that chronic pain and illness put patients at risk for suicide. An illness like fibromyalgia or chronic fatigue syndrome, which is often doubted or neglected by the medical community, the public, and sometimes family and friends, can present unique problems. Patients with FM/CFS can become victims of isolation and despair. Secondary depression is a well-known symptom of FM/CFS and is common with any type of chronic pain. Sufferers depend on a variety of sources of support, including pain management, psychological support, and financial support. When one of these essential needs remains unmet over a long period of time, it is possible for patients to begin to believe that their situation is hopeless. In fact, a recent report published by Action for ME, a UK non-profit organization, revealed that 51% of survey respondents have felt suicidal as a result of their illness. Those with the most severe cases of the illness and who received delayed diagnosis and management were most likely to have considered suicide.

Responding to Suicidal Thoughts

How we feel..

How we feel..

Martha Ainsworth, founder and director of Metanoia, a non-profit organization dedicated to suicide prevention, describes the problem of suicide succinctly. She writes, “Suicide happens when pain exceeds resources for coping with pain.” There are many kinds of pain that may lead to suicide, and individuals vary greatly in their capacity to withstand pain. According to Ainsworth, you can survive suicidal feelings if you do either of two things: (1) find a way to reduce your pain, or (2) find a way to increase your coping resources. Both are possible. It is important to realize that suicide is a permanent solution to a temporary problem. The Journal of the American Medical Association has reported that 95% of all suicides occur at the peak of a depressive episode. For many people who feel suicidal, there seems to be no other way out. But suicidal thoughts are typically a reflection of distorted thinking caused by severe depression or even by the neurological changes associated with FM/CFS itself. When we are depressed, we tend to see things through the very narrow perspective of the present moment. A week or a month later, things may look completely different.

Warning Signs of Suicide

  • Talking or joking about suicide or statements about being reunited with a deceased loved one

  • Making statements about hopelessness, helplessness, or worthlessness (“Life is useless” or “Everyone would be better off without me.”)

  • Preoccupation with death (recurrent death themes in music, literature, or drawings)

  • Appearing suddenly happier or calmer

  • Loss of interest in things one cares about

  • Unusual visiting or calling people one cares about (saying good-byes)

  • Giving possessions away, making arrangements, or settling one’s affairs

  • Self-destructive or risk-taking behavior (alcohol/drug abuse, reckless driving, self-injury or mutilation)

download

WE ‘ALL’ GET THIS…

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LOL..So true

Most people who once thought about killing themselves are now glad to be alive. They say they didn’t want to end their lives – they just wanted to stop the pain. According to Dr. William Collinge, Ph.D., author of several books including Recovering from Chronic Fatigue Syndrome, “If you can remind yourself that the suicidal thoughts or feelings are transitory and symptomatic of the illness, this will help you get through those times when you are in the bottom of the pits and can’t see any way out. Also, talking about your feelings with a confidant or loved one can help immeasurably.”Experts agree that talking about suicidal feelings is one of the most important things you can do. Talking to a caring and supportive friend or family member can be helpful, and there are a variety of helplines and support groups to whom people who are feeling suicidal can reach out. Severe depression, the primary cause of suicide, is highly treatable. If depression is recognized and treated, many suicides can be prevented. Anyone who has suffered with fibromyalgia or chronic fatigue syndrome knows that it requires a huge adjustment, not only to the illness itself but to all the consequences it has on our lives. Chronic illness is likely to affect the way sufferers live, the way they see themselves, and how they relate to others. With the present state of world events, many people are feeling additional tension, anxiety, or sadness. But suffering with severe depression may be unnecessary. If you or someone you know is having thoughts of suicide, it’s essential that you know you don’t have to go it alone. Suicide is preventable, and there are a variety of resources that can provide the support you need.

FAMILY/FRINDS/FIBRO/CPS – http://www.cfidsselfhelp.org/library/topic/Family+%2526+Friends

http://scopeblog.stanford.edu/2013/08/13/fibromyalgia-living-with-a-controversial-chronic-disease/

http://www.cfidsselfhelp.org/library/topic/Treatment+Options

http://www.cfidsselfhelp.org/library/killing-me-softly-fmcfs-suicide

http://www.patient.co.uk/forums/discuss/do-i-have-fibromyalgia-syndrome-257094

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World’s first Chronic pain, Fibromyalgia centre to open in Scotland


Gartnaval Hospital to become Scotland

Gartnavalto become first Scotland chronic pain inpatient Hospital

By @ShaunyGibson – Used to be @ ShaunyNews

A national service to help people who suffer chronic pain is to be based in Glasgow. The Scottish government(SNP) has announced that a dedicated team will be located at the Gartnavel Hospital site. They will provide residential courses for patients and carers on how to cope with the effects of chronic pain, and how to manage their condition. In Scotland all medical practise, procedures and medication are free to everyone, this is a boost for Scotland and Chronic pain and Fibromyalgia sufferers

Chronic pain affects about 18% of the population, or 800,000 people in Scotland. Chronic pain is often attached to other conditions, such as arthritis, cancer, back pain or MS, which means it is often left to those specialist departments rather than having a service dedicated to the pain itself.

Currently patients have to travel almost 400 miles to Bath for the level of specialised care that will be offered at the new national centre for excellence. Campaigners had been pushing for Scotland to have its own residential centre, along with better day services.

Last year, Health Secretary Alex Neil announced a consultation on the issue and pledged to improve care. The first patients will be seen by the new service in January 2015 and it is due to run at full capacity during 2016. Public Health Minister Michael Matheson said: “Chronic pain can be distressing and difficult to deal with, but we know that if the condition is managed well, it can make a huge difference. “That’s why this new national service, based at a single location, will have a truly positive impact on people’s lives. “The establishment of this new national service in Scotland is a major milestone for people who suffer from chronic pain.

Prof Blair Smith, national clinical lead for chronic pain, said: “I’m looking forward to working with colleagues to get it up and running. The care and treatment that the residential service will provide represents an important part of our ambition to improve the lives of people living with chronic pain. “This new national service also presents Scotland with an excellent opportunity to build on our experience of developing world recognised research, with the aim being to deliver continuing improvements in the treatment and management of chronic pain. “This will benefit the many thousands of people in Scotland living with pain daily.”

http://www.bbc.co.uk/news/uk-scotland-glasgow-west-27963138

http://www.alliance-scotland.org.uk/who-we-are/our-members/

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Podcast/Audio on Fibromyalgia/Chronic Pain


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I stopped my last blog 5 months ago and started ShaunNews because I was talking about pain far too much. People in my Family and Friends didn’t want to know, so I stopped and to be fair it helped. Only very often will I rant here or Facebook or wherever. I think it’s vital we live and very important we don’t deny our pain. Fight and live.

Podcast/Audio on Fibromyalgia

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20 Years of Fibromyalgia – The Story of Paul from the USA – Very Similar to my story. You?


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Sunday morning and I am in bed beat by an invisible monster. From time to time I read what others go through and it staggers me to see and know that everyone’s story is the same. Family belittle us, Friends think we tell lies. This is a story from ALL Fibro sufferers. I find it astonishing how we all tell the same story, have the same issues and battle the exact same demons. For anyone with Fibro and MORE IMPORTANT I THINK, for anyone in a relationship with a Fibro sufferer, I think watching this video will be of benefit. Paul in the video below tells a story I can relate to in oh so many ways. I just watched it with Dawn my partner. I am lucky she kinda understands, I can’t accept the girl to 100% get it, but she tries, she understands when I vent, like Paul says below and like you, a fellow sufferer tells, we all have this story, it matches up all the time. Here is Paul. It is 20 minutes, I ask you watch it and I hope it helps. Sadly many will look at this headline and think “Oh give it a break” Well all I can say to you is, “You get a soul” I can’t and don’t get people who don’t care, who belittle people with this. I had a family member tell me to “Give it a break, your not dying” I won’t speak to that person again. I have no time in my life for people who want to see me and treat me different. That is the thing, people think we want sympathy, NOTHING could be further from the truth, we just need to vent, imagine having toothache for a year without it stopping, now imagine that pain all over your body, all the time, never stops. And people ask “Why don’t you visit” I still have family members myself who get annoyed I can’t do things. Anyone who knows me and is still a friend will know that if I could still do football I would NEVER have started to write. Writing gives my brain a tiny bit of relief. This is one of a few small tricks I have learnt as the years have gone on. Don’t belittle me, I hate gossips, I would rather people, like my Sister said it to my face. Still was wrong, but I rather that that Jekyll and Hyde people. All smiles to your face or when they want something from you then turn around when you are not there and guess on you. It pissed me off no end. How does this all effect you? Watch the video, try and get where Paul is.

Paul Harrison

fibro-sufferer1

 

Fibromyalgia Documentary Sneak Peek – Living in agony, my story


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As I seek to free my mind and body from the hell that is Fibromyalgia, I often stumble across people who ‘claim’ to know of treatments. Some sit around stones, some pray to God, some say eating habits, some say they have ways. I have tried them all. I am yet to find relief. There is no calendar date with Fibro, we are not told “You have a year to live” Many of us want to hear that. I know that sounds awful but when you burn in pain 24/7 what else are we to think? I speak to hundreds of other Fibro sufferers, I am part of many groups where we talk about things that help. For me Music helps a little, I sit with my headphones on and allow the Music to change my mind. The Central Nervous System then sends out different signals. But it is a very short term thing. Last night I had to go to bed at 7pm in tears as the pain was unbearable, I crawl sometimes. When I am around loved ones or friends I have to pretend and that hurts. People I used to visit I now don’t and they never get why. I can try and tell people but it is impossible. I don’t blame you or anyone for thinking I whine over nothing, I would think the same if roles were reversed. I know pain, I understand pain, I live in pain, there is no let-up, it NEVER stops. I am 41 years old and I have had this they think (Pain team and Dr’s) since I was a kid. When I hit my mid 30’s it hit me like a car. The pain before was brutal, the pain now makes me want to end it. I WON’T EVER DO THAT. But I am only human right? I can’t comprehend a life with no pain. I am lucky that although I have Fibro Brain Fog and it can make me lost a word or forget what I was saying. When I am with people not in my house and I lose track it can be devastating, so I stay away from people in-case that happens. The pain kills me. I have two wonderful sons who help and two sweet Daughters who ask me questions now. “Daddy, why are you sore” I answer “Daddy hurt his leg playing football” And they skip away happy. But I crumble inside. I didn’t want to give Dawn this life (My Partner) But she is my rock, she saved me from myself and every day she smiles and loves life and this helps me. There is a documentary coming out and I will share it here when it’s out, but for all sufferers here is a clip. For family who wonder also even 

None of us with Fibro want sympathy, in-fact we hate that, we just want understanding. I had a family member, a sister, tell me on Facebook in full view of everyone to man up and stop moaning. Yeah I lost a Sister that day. She has her own issues, so I understand, but she doesn’t cry everyday with a pain that is like being burn alive or all over toothache, that is the best I can do to describe my hell. I make sure I have good moments. I demand I do. I play with my Daughters, drawing and games. But when I have to stop through pain, I don’t think there is a word I can find to tell how I feel. It strips me of all emotions and leaves me in a bubble all alone 

I hope and pray YOU never get Fibromyalgia, it is for life, there is no cure there is no getting away from it. It can be hell. Maybe it is Karma from my childhood? And being a young adult? Who knows 

More love less hate, Shaun

 

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Audio Blog/Podcast – My Thoughts On The Referendum for Scotland


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My thoughts on why Scotland should free itself from the British Union. This will be the first of many Audio/Podcasts as we lead up to the vote. Let me know what you think, please. 

I suffer from Fibromyalgia and it was 3am, so please, a few mistakes were said… Gies piece I said ‘Declaration of Montrose” Of course, it’s Arbroath

😀

Saorsa don Alba